At about 11:30AM, we finally manage to see the consultant Haematologist, Dr. Ng. He explained that in the west, CML is normally found on adult, >30 years old. In the east, we have cases even in children, as young as 13.
Two options are available, poping pills for the rest of his life or do a stem cell transplant.
Option 1: This is not too bad if the case is an adult. Also, it seems that stem cell transplant is more troublesome for much older adults. For young children, they seem to response better to stem cell transplant. Another issue with popping pill has to do with compliancy, ie, consistently taking pill without miss.
Option 2: Stem cell transplant. Dr. Ng just came back from a conference and informed that in China, a certain Dr. Huang, prefer stem cell transplant for younger people. This is for practical reason and also more logical. The main driver is that stem cell transplant offers a permanent cure. But the side effect is body rejection of the donor's cell. For this option, the patient will go on the drug for 6 months until the situation stabilises; then a transplant is done.
Ah Jon is fortunate that he has 5 other siblings and there is a 25% chance of a match in each one.
The doctor recommended option 2, and will carry out a mini stem cell transplant in 6 months. He needs to stay in a clean room for one month at a cost of >RM100K.
We prefer option 2 right from the beginning because this is his only chance to live a normal life.
Is there a divine intervention here? I would think so! Months ago, the three girls all decided to come back this year and we all agreed to that. They have been away for up to 4 years. Then he wanted to stay back in Miri to study against the will of the parents who prefer to pack him up to study elsewhere. We agreed to his desire. Next, if he didn't have that car accident and a small fever, it would never trigger off the blood test.
Are all this coincident? I don't think so.
Please pray that he will response to the drug Glivec (imatinib) and that he will not suffer any serious side effect. Also pray that one of the sibling would have a perfect match.
We thanks our company for covering the cost of treatment. Glivec costs RM300 per pill (US$3000 per month) and he needs a pill a day for the next 6 months.